Rev. Kelli had had a devotional published by the United Church of Christ Disabilities Ministries!
The link is above, please visit!
Rev. Kelli had had a devotional published by the United Church of Christ Disabilities Ministries!
The link is above, please visit!
I am just returning from the 10th General Assembly of the World Council of Churches in Busan, South Korea! I was honored to serve as a North American representative to the Ecumenical Disability Advocacy Network (EDAN) Pre-Assembly Event and a Untied Church of Christ Delegate to the General Assembly. I hope to post a series of reflections on the events of the last two weeks as I process this unique experience.
I was asked to preach at the closing worship service for the Ecumenical Disability Advocacy Network’s Pre Assembly Event in Busan; below is the sermon I presented.
Jeremiah 29:1, 4-7 1 These are the words of the letter that the prophet Jeremiah sent from Jerusalem to the remaining elders among the exiles, and to the priests, the prophets, and all the people, whom Nebuchadnezzar had taken into exile from Jerusalem to Babylon. 4 Thus says the Lord of hosts, the God of Israel, to all the exiles whom I have sent into exile from Jerusalem to Babylon: 5 Build houses and live in them; plant gardens and eat what they produce. 6 Take wives and have sons and daughters; take wives for your sons, and give your daughters in marriage, that they may bear sons and daughters; multiply there, and do not decrease. 7 But seek the welfare of the city where I have sent you into exile, and pray to the Lord on its behalf, for in its welfare you will find your welfare. (1)
“Exiles for Peace and Justice” sermon by Rev. Kelli Parrish Lucas for theEcumenical Disability Advocacy Network (EDAN) Pre-Assembly, WCC 10th General Assembly, Busan, South Korea on October 28, 2013
Brothers and Sisters in Christ it is an honor to speak with you today. As we worship together now, let us consider God’s word for the context of our own lives.
Our text for this evening comes to us from the Book of Jeremiah.While I admire Jeremiah faithfulness I have always felt that much was asked of him. The prophet Jeremiah’s unenviable task was to convince the people that going into exile was the only way for their community to reestablish right relationship with God. We understand that his message that people needed exile likely did not make sense to those around him, but Jeremiah also gave hope. Indeed our text comes from the portion of Jeremiah in which the prophet is seeking to give hope to the exiles, hope that peace and justice would still come to the world.
Like the people that Jeremiah sought to console—we too have traveled far from our homes too seek justice and peace. However we are different than those Jeremiah spoke to. Not only are we far from home but we are people with disabilities, and we are allies who have had that conversion moment in which through the depth of friendship and solidarity there is understanding that people with disabilities experience the world and society differently than persons without disabilities.
The experience of disability is as varied as the people in this room. Disability is a social location experienced by living in the world in an individually unique way, and yet that experience of being uniquely different from everyone else is an experience that is shared by all people with disability. This solitary nature of living with disability intrigues me, for we may be individuals but collectively PWD are the largest minority in the world.
The North American theologian, Thomas Reynolds has written that disability “entails involuntary impairment and real suffering, much of which is the consequence of social alienation and exile”(2). As a person born with mild cerebral palsy which manifests as a speech impediment and as one who has acquired chronic pain, the suggestion of disability as exile speaks to me. Most of us have had, at some time, an experience in which our day to day life is so different from our friends and colleagues without disability, that as people with disabilities we may easily relate to the experience of exile in our text today. Perhaps from our social location of disability it is clear to us that we are currently living in a world that is not just towards persons with disability. A world in which all God’s children are not living in peace.
In my American context we have a perplexity. The ADA made many public spaces accessible but churches were exempt. As a result in America faithful persons with disability still find themselves exiles of faith communities, either because local churches lack accessibility or social stigma and social inaccessibility leads to a lack of opportunities for PWD to fully participate either as lay members or employed as clergy with disability—it is a lack of justice and of peace.
So what are people with disabilities around the world to do when the Body of Christ is not accessible to them or excludes them? Brothers and sisters, I want to suggest today that we are to take encouragement from the words that Jeremiah spoke to the exiles. We are to build the foundations of a new inclusive church, within the current church—we are to plant our hopes, and teach these ideals to the children. We are to seek the welfare, of the community in which we find ourselves.
As persons with disability we seek the justice not only of physically accessible churches but inclusion in the ministry of the church and opportunities to serve the church. We seek the peace of full social inclusion in the church so no person is made to feel less than the fearlessly and wonderfully made child of God that they are.
The words of Jeremiah call all of us to speak out about who we are, to be willing to be exiles for peace and for justice when we are called to do so. This is not easy work, particularly when the work of inclusion is ever widening the circle of God’s community. Indeed this work asks much of us, calling us to do new things to bring God’s justice and peace to the world.
For the past few years the disabilities ministries and mental health ministries in my denomination have been working together. It has not always been easy for the two exiled groups to act as one, but it is effective. We continue to teach the church, and we continue to learn from each other. One of the things I have learned from our partnership, is that as far from justice as the disability community is there are still others who need the disability community to welcome them into the church , into the pews, and into ministry together. We are a sprout of justice.
As we go forward into this week, discussing all manners of the ministry and work of the Church universal, I ask this group—the advocates and associates of the Ecumenical Disability Advocacy Network, to be attentive to how we may be called to use our perspective—to call the assembled body of Christ to new ministries of inclusion, even if in doing so the way to the future is, yet, unknown.
May God Be with Us and Meet Us as we work for justice and peace!
Well its hard to believe that in less than a week I will be flying off to the General Assembly of the World Council of Churches in Busan, South Korea. The theme of this Assembly is Justice and Peace. I still have things to do before I go. I am preaching while I am there. I will also be serving as a delegate to the General Assembly from the United Church of Christ and of the Ecumenical Disability Advocacy Network! Please keep me and all the delegates in your prayers as we prepare for this Assembly, as we travel, and as we deliberate and engage in intra-faith dialogue. (And I hoping to make friends with some Eastern Orthodox priests!)
Thanks, Rev. Kelli
This just in from Rev. Susan Burns, UCCDM Board Member…we are posting the link to her blog.
On Access Sunday this year I was invited to speak to a local congregation about disability and diversity. Below is the talk I prepared, I did not follow it completely in speaking but it is my thoughts on the matter. I am available to speak with congregations about accessibility and disability ministries.
I am Rev. Kelli Parrish Lucas and I want to thank you for asking me to speak with you this evening. I was asked to speak with you this evening about the issues of disability and diversity—I am especially happy to have this talk with you this evening as today is what the UCC calendar calls Access Sunday, which is a day to celebrate accessibility in local churches; it is also the beginning of disability awareness week which concludes a week from today with Mental Health Sunday . So by further way of introduction let me introduce myself as a person with disabilities I was born with disabilities so I grew up with all the social stigma of disability but as I grew I was also well trained to pass as a person without disability; I have also acquired disabilities as adult and been a caregiver for persons with disability and mental health issues. So I come to speak with you about the diversity of disability as a person with disabilities. As I believe you were told in preparation for this evening, I also serve on the Board of Directors for the United Church of Christ Disability Ministries, for who I am the Secretary; and I am engaged in the ecumenical work of disability advocacy through EDAN a program of the World Council of Churches.
In many ways I am still musing about how to speak to you about the diversity of disabilities. (Because of our limited time I am going have to be rather general so please write down your questions to ask later.) Disabilities and all that is included as a part of that is a very broad spectrum, but that does not mean it is relative and we can say we are all somehow “disabled”. I say that up front because I think that as we look at what disability is there is the temptation to make it into something that includes all people, and it simply is not. Disability is a social location experienced by living in the world in an individually unique way, and yet that experience of being uniquely different from everyone else is an experience that is shared by roughly 1 in 5 persons world-wide or 20% of persons. I also want to say a word about mental health. Mental Health issues affect 1 in 4 families, or 25% of American families. While disability does not guarantee that a person has a mental illness, often times the social stigmas, effects of bullying and/social oppression/discrimination that people with disabilities commonly experience lead to the development of mental health issues—btw I have read some statistics that suggest that bullying of youth with disability is more common then the bullying of any other youth, including GLBT youth. Similarly although having mental health issues does not necessarily mean that a person with mental health issues has another form of disability, many mental health issues have physical effects and may lead to temporary physical disability as part of the mental illness. I am going to talk about later about the specific work that UCCDM and the UCCMHN are doing together. But for now, I just want to underscore for you what these statistics mean—it means that for every 100 people in your church, 20 people likely have some type of disability and 25 likely have or are in a family with a person with mental health issues—and there is likely some over lap of these persons.
If we had more time I would ask you at this time to tell me what a disability is and I would write that all out for us to see, we don’t have time for that, so pull what it is you think a disability is up in your mind. Have you got it? Good, but we won’t have time to share that right now, but hold it for your small group discussions. There are two definitions of disability that I find to be very very useful.
1. “[a] firm definition of ‘disability’ underlies the authority of the ADA, which defines ‘individual with a disability’ rather broadly. A person may be considered disabled if he or she has (a) has a physical or mental condition that substantially limits one or more of the major life functions, (b) has a record of such impairment, or (c) is perceived as having such an impairment. Even if the impairment is no longer present, the individual may still be considered disabled. [Arthur Shapiro, Every Body Belongs: Changing Negative Attitudes Towards Classmates with Disabilities, (New York: RoutledgeFalmer, 1999) 263.]
and, people with disabilities have developed the following definition of disability, which is used in the ecumenical movement
2. “Impairment: Lacking all or part of a limb, or having a defective limb, organ or mechanism of the body.
Disability: The disadvantage or restriction of activity caused by contemporary social organization which takes no or little account of people who have physical impairments and thus excludes them from participation in the mainstream of social activities.” [Arne Fritzon and Samuel Kabue, Interpreting Disability: A Church of All and for All, (Geneva: WCC Publications, 2004), ix-x.]
We are still going to talk about what disability is for a moment but I want to start moving into disability and the UCC. The UCC has been involved in addressing the issue of disability through an active disability ministry for at least the last thirty years. The most recent General Synod resolution about disability, called “The Called to Wholeness in Christ Resolution”, was passed in 2005 and it calls on all expressions of the UCC to become accessible in the spirit of the ADA. This means our Synod has called for local congregations to work for the full inclusion for all persons with disability–
This includes: Physical disabilities, Developmental disabilities, Mental/Emotional disabilities (including mental illness, brain disorders, autism, depression, anxiety, ect.); Mobility disabilities (arthritis, back issues, use of canes/walkers/wheelchairs ect.); Auditory/hearing impairments; Vision impairments; Temporary disabilities; Hidden disabilities (things people don’t/won’t talk about); Disabilities brought on by accidents or age; and anything else missing from this list.
Guiding churches in doing the work of becoming accessible and inclusive of all persons with disability is part of the work done by UCCDM. The UCCDM has a designation we call A2A. Churches who want to be A2A are asked to work through a curriculum/resource packet to help the congregation gain a better understanding the breath of the diversity of disabilities, how to be welcoming and inclusive of people with disabilities, and how to be prepared to make appropriate accommodations when necessary. This resource packet is called “Any Body, Every Body, Christ’s Body” it is free and you can download it from the UCCDM website. The UCCDM Board acknowledged that while accessibility for churches often means making physical accommodations, the majority of work involved in becoming accessible is related to what we term becoming “socially accessible” to people with disability and this is a process of learning and integrating disability etiquette.
Many people do not realize or forget that up through the 1970’s people with disabilities were prohibited from public spaces under what were called “ugly laws”, confined to institutions (sometimes w/o consent), denied the right to marry due to eugenics laws, and that people with disabilities were not guaranteed access to public education until 1973. As you can guess there is still much work to do in society before we reach the full inclusion of people with disabilities and persons with mental health issues—but there is actually more work for us to do in our churches. When the ADA came into existence it was supported by the churches, but most people don’t realize that the clergy supporting the passage of the ADA also worked to exempt churches from the implications of the law; the result is that in addition to churches being among the most racially divided places on Sunday mornings, churches have become the most inaccessible places in our communities.
The UCC and UCCDM have been heavily involved in area of civil rights for people with disabilities; just as all groups of people who go through a civil rights process seem to reclaim. language and even rename themselves as a group, the disability community has done this as well. The UCCDM through the A2A resources have sought to establish the use of what the disability community calls “people first language”, and that handout is on the table for you. People first language is language that names the person, or theologically the humanity, of the person about whom one is talking or writing before defining that person by their disability, as previous terms did. People first language is the standard within the UCC and within the disability community—I will tell you that some disability scholars with disability are using other terms and the language within the disability community is in flux, but people first language will not offend, so its safe as a rule to use in all settings.
So I just want to close with a very brief description of the larger work of the UCCDM. The UCCDM has fostered a renewal of the UCC Mental Health Network, which this summer changed their name to the Mental Health Network. Some of the other projects that the UCCDM is actively engaged in are….[this has been omitted from this post, please see uccdm.org for more information about UCCDM activities]
So that is just a little about the diversity of the disability community, disability history, civil rights, and how disability is part of the life the UCC. I am going to stop and open it up to questions.
Note this maybe a part one of more.
Occasionally I am reminded that people don’t understand me…reminded that I don’t fit the neat categorical boxes…and occasionally I am reminded how uncomfortable that can be for me and other people.
I had the unfortunate experience of this happening to me at the recent UCC Synod in Long Beach, California. I was there as a delegate for the Justice and Witness Ministry of the denomination, the board that I served as the disability ministry liaison to until the denominational structure changed at the end of Synod. As a delegate I was on the floor for discussions, and there were a lot of us, so I tried to minimize my speaking so all who needed to speak may be heard. If you know me, or have read a few of these blogs, you may know that means I found myself at the microphone at least two or three times (in five days to be fair to myself). Once upon returning to my seat I had the following conversation with a man who was also in the Justice and Witness delegation with me, thus he knew me from previous board meetings and who I represented. My inner thoughts, no matter how badly I wanted to say them, will be in italics:
Man: You don’t (snidely) really have a disability, but I think its nice you speak up for people who do.
Me: Excuse me, wh-at? What did you just say? I’m not disabled, or not disabled-enough? Act-u-ally I do have a disability. (I spoke slowly and clearly so he could hear me in the convention hall with 2000 other people, and at the table full of our delegation, and clearly he lacked understanding the type for which I lack diagnostic powers.)
Man: (He leaned in close to me, and if he had been any closer I would have felt his beard hairs brush my face.) No you don’t. (Nodding his head closer to me. This man was in my face!) Well, then what is your disability?
Me: Are you kidding me? I can’t believe I am going to answer that question. But I have to because if I don’t he either thinks I am a fake or a liar, my only choice is to revel my personal medical history. So I gave him the bullet points of my history. I felt like I was unveiling a secret window into my personal and family history–not because I was ashamed but because it was personal and vulnerable and I was surrounded by people in a loud place and practically commanded, not asked, to reveal myself, or else be deemed a fraud. Only in retrospect as I consider the gender, age, and racial power dynamics of this interaction do the connotations of white, male, aged, and able bodied privilege reveal themselves. In retrospect this man becomes more and more a creepy old man.
I quickly looked away and avoided eye contact with him. The business of the evening moved on. I glared. He moved back to his seat at the other end of the table. I watched him and his presence made me uncomfortable the whole rest of the evening. I knew I was upset, I did not want this unjust and unequal type of exchange to color my experience of Synod. I knew he was only one person. But, still, this was church, ALL SHOULD BE WELCOME, INCLUDED, and AFFIRMED. But I felt uncomfortable and unsafe. I seethed. I had trouble focusing on the worship but somehow pulled myself together. I knew if given the chance I needed to ‘lean-into’ this conflict.
At the end of worship and the evening I felt heavy and weighted, and only partly because I was exhausted from the day. Most people left the convention hall quickly. I soon found that myself and this man were among the last at our table. I glared at him. He stepped forward to give me a hug, having been all pumped up by the preacher.
Me: No. I am sorry. I want to be in fellowship and Communion with you, but I am still thinking about our earlier conversation and I am just really hurt.
Man: I understand. (He dropped his arms and started to drop his head.)
Me: I don’t fall for the dejected liberal do-gooder act very well. UMM. No I don’t think you do. To insinuate that I don’t have a disability, or am not disabled enough, when you know that is obviously how I self-identify is not ok. It is a form of bullying. I have to put up with that type of bullying in the world and in the workplace but I’ll be dammed if I am going to put up with it in church! And you did that while wearing your anti-bully scarf so no I don’t think you understand at all!
He but his hands to together as if in respect and walked away out of the hall, as he left I saw him take the anti-bullying scarf off and place it in his bag, that made me feel slightly better. I was very upset and had to find one of my disability peeps to talk to about this.
The next day, Synod debated the anti-bullying resolution that was before us. I spoke from experience about being bullied as a person with disability, and reminded the church, the Synod, that it happens even “here” within the “bar” that separates delegates from the rest of the church; and I asked they vote not to feel good but to change themselves.(The UCC News quoted me.)
One of the staff members saw me the following day and asked about my comment related to being bullied at Synod. Upon my arrival to Synod I had been talking with this staff member, who happens to be African-American, when another (white) delegate came up and asked her if she had “gotten a tan” on vacation; by the time I was mid-way through my double take processing the comment about a “tan” the staff member was so elegantly agreeing that she had gotten a “tan” that I almost believed it was casual conversation. It wasn’t and the staff member brought it up when she asked about my bullying comment. We alluded to having some of the same feelings related to our separate experiences.
So church, think before you speak or ask… Think about the privilege you carry that others may not have. Consider the other, the Thou, the beloved child of God before you speak. Just think before you open your mouth. Could what you are about to say be offensive? Can your curiosity be framed another way? Because, yes, I do have a disability; and yes, maybe she did get a tan. But then maybe, just maybe. ITS NONE OF YOUR DAMMED BUSINESS!
The Fourth Widening the Welcome: Inclusion for All Conference sponsored by UCC Disabilities Ministries and the UCC Mental Health Network. A Pre-Synod event will be held Thursday, June 27, 2013 in Long Beach, CA. 8am-8pm. Exact location to be announced.
Speakers will include Rev. Susan Gregg Schroeder, Founder of Mental Health Ministries and Rev. Kathy Reeves, Coordinator of the Ecumenical Disabilities Advocacy Network–North America, a program of the World Council of Churches.
Save the date, more details to come!
I am coordinating this event. I will also be offering the following workshop at the event:
Spiritual Care for Persons with Disabilities and Those Affected by Serious Brain Disorders Associated with Aging
This workshop is a multifaceted look at providing pastoral care to people with disabilities (PWD). This workshop will provide disability culture and awareness information that all professional pastoral care providers should be aware of in providing pastoral care to PWD. This workshop will touch on some historical ecumenical responses to disability, particularly the shift in ethical responses to disability that affect care provided. Finally this workshop will address providing pastoral care to persons affected with dementia, relying on first and second hand accounts as available. (Developed for professional pastoral care providers, and accessible to lay people.)